Some of you have often wondered just what it is that I have. Since this is National RSD Month, I thought I would explain it in full. Reflex sympathetic dystrophy or CRPS complex regional pain syndrome is a chronic neurologic condition where your automatic nervous system runs amok for whatever reason. Nerves misfire and constantly send the wrong messages to your brain.
Scientists/Drs still do not know what actually triggers it and there is no cure. Up to 6 million people in the US alone suffer from this.
It causes unrelenting severe pain, burning, tissue swelling, joint immobility, muscle spasms, paresthesia (numbness), sleep disorder and depression from the never ending pain, One can also have bone changes like osteoporisis in the affected area. Many complain of mental changes like memory and difficulty getting a word to the tongue from the brain. This latter one upsets me the most. I can be talking and a simple word like many or a personal name is in my brain and i can see it but for some reason it will NOT come to my tongue so I can speak it.
It has been related to traumatic injuries, following surgery, infection and sometimes there is no incident found to have been the cause.
Mine started after a devastating knee injury when I was working in the hospital. Six long years and 35 physicians later I have RSD/CRPS and am a survivor. Early diagnosis and treatment is the key to a possible remission or prevent of spread. I was not so lucky as mine wasn't diagnosed for almost a year and a half.
Parts of my life as I once lived it are no longer. Through the grace of God and a few great drs I am doing okay.
My family is the center of my life and that has not changed. I thank God for them and a few very special friends for keeping me focused and always watching my back.
Blogging helps me keep focused on the positives and keep moving forward. The friends I have made from
this blog help me to remember the goodness that comes in small ways every day.
I thank every one of you who are there in my life and who openly share the ups and downs in theirs as well.
We are all here to meet people and socialize in different ways but the underlying theme is about sharing...ideas.....art....family...culture.....faith.....health.....illness......joys....hardships.
Isn't it just amazing and truly wonderful?
this video spot is put out by the austrailian support group for rsd but it explains how our lives are affected every moment of the day. I wanted to share it with you for a basic explanation of what RSD is.
I also ask that if you know of ANYONE enduring a chronic illness or in chronic pain that you pray for them and their families. You might even do a small generosity that will reach far beyond its measure.